The Waiting Room ... Again

 Since my last post, most of the time has been spent in waiting. Day-to-day duties and chores are getting done, even if a bit late at times. The main feature of our moments has been hubby's pain management, as the tumour on the pancreas presses in on his spine and causes nerve pain, which we are managing with prescribed pain-killers. 

We have been charting the little victories: the chiropractor whose treatments and whose prayers over him have reduced the severity of the pain - as the muscles around the area are very tight and increase the pain, and discouragement also increases the pain - and we look forward to those sessions.

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I've been waiting specifically for any contact from Oncology. Thankfully, two days ago (Friday, July 3) we got a call from the Cancer Centre with the information we'd been waiting to hear: he has appointments this coming week - July 6, 7, and 8 - culminating with a consultation with the medical (chemo) oncologist who will be working with us. I say "us" because we are just as much a part of hubby's treatment as the chemotherapy drugs will be. 

We've been asked to bring a few things: his health care card, his medical insurance number, and his pills (including supplements and over-the-counter meds) in their actual pill bottles. That leads me to believe that they will be billing his medical insurance for the chemotherapy drugs, and they are NOT CHEAP. Since his plan covers only 80% of the cost, there will be a cost to him for the treatments that have the purpose of trying to kill the cancer while saving his life. 

Wow. Just ... wow.

To ask for help is not in our nature, so I'm not going to do so at the moment. People have been very kind, offering help in tangible ways like mowing the grass or transporting garbage bins, etc., and we are grateful for every single act of love and support we have been receiving, knowing full well that there is no way we can repay anyone for their kindness. We are so humbled by their generosity. We are so blessed by their love and their prayers and positive thoughts toward us. 

Nobody has been negative - at least, not on purpose - and we are grateful for that as well. We can feel the love holding us up, the prayers acting like a life-jacket in deep water, the social media likes and comments that remind us that we are not in this alone. It all helps. So, even though it feels so NOT enough for me to say, I say it anyway: THANK YOU ALL. 

We still believe in miracles, whether they come instantly or gradually. And we look forward to what our Higher Power will do through those whom He has gifted with special talents and gifts.   

Love Heals More

The last few weeks has been somewhat of a whirlwind combined with a nightmare. My daughter and I have been concerned about my husband's weight loss and loss of appetite, especially after he stopped trying to lose weight, because his appetite has stayed near zero and his weight loss continued. 

Finally, while consulting for low iron, the doctor ordered a colonoscopy, which revealed no internal bleeding. Yet the numbers were still low. So, he ordered a CT scan of his head and of his torso (shoulders to pelvis). The scan was on a Friday. The following Monday, we were called into the doctor's office and told that there was a 7.2 cm mass on the tail of the pancreas, and some suspicious "spots" on his liver and on his right adrenal gland. The next few minutes were a blur of talking about Oncology and about a biopsy they needed from the liver site, as the pancreas could not be reached by the type of biopsy they were planning to do.

Telling our daughter was hard. Losing one (or both) of us was her worst fear. She kind of knew when she hadn't received a text from me ... but it was still hard to see the sadness in her eyes. We wondered when the biopsy would be. "Sooner rather than later," the doctor said. 

The biopsy occurred within a week. And we waited, hoping that the results would be benign.

They weren't. Another trip to the doctor to discuss findings, this time with our daughter. Metastatic pancreatic carcinoma, with spread to the liver and that adrenal gland, we heard. 

I felt the sudden rush of panic I had felt in the first meeting, but I saw it coming and decided to compartmentalize my own fear for his sake. For their sake.

No amount of preparation or bracing can prepare you for that kind of news. It's like having nightmares of monsters, finally relaxing because someone is there to chase them away, and then realizing that they came for the one who chased them down. There's fear, panic, grief, sadness, anger, and pain all bound up into one entity that I try to push away from me because it's too much all at once. 

I am the ultimate catastrophizer, the quintessential awfulizer. I can imagine scenarios upon scenarios if I let myself. I have a vivid imagination, and sometimes, it turns on me. I can't imagine living without him, and yet, now that imagination leads me to that place where I feel forced to do just that.

And yes, I know it's not healthy. As a counsellor, I can identify all the negative patterns of thought. But I also understand that those feelings are absolutely normal for what the situation is. 

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As a practicing Jesus-Christian, I believe in divine healing, absolutely! And from the moment this first became "a thing," I've been speaking healing, strength and life into my husband's body, telling the cancer to cower, to shrink and to be expelled in Jesus' Name. Dozens, maybe even hundreds are praying for his healing as well. Those who don't believe the way we do are still sending positive thoughts and vibes toward him and toward our little family. 

And some of those who are able ... have offered help in tangible ways. Mowing the lawn, for example. Neither I nor our daughter can do it because of allergies, so others have offered and we have accepted their offers.  The hardest part of that is accepting the help and learning to receive it, because he has always been the one to give to others. So now, we've started telling him that it's HIS turn to benefit from being given to. So when our daughter or I do the dishes or take out the trash or whatever... it is one less thing that HE has to do (see "Every Snowflake Counts", my feature post, visible on your PC.) 

And we are grateful for every single day. All of us. Because love - that is the only thing that heals. And it heals more than all the pills, injections, and treatments can do. It's healing us all on the inside, where it counts. 

And all I can do - all we can do - is be grateful. 

 

 

The Child Within

 She's been with me ever since I can remember.

The child - me as a child.

She wants to be cherished, loved unconditionally, and protected.

She's learned that the world isn't like that. 

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She's afraid, self-conscious, shy, lonely, and at times even suspicious. Suspicious of new things, of new people, of letting her light shine.

Afraid of others' judgment, she hides and defines herself the way her abusers did: small, insignificant, a country mouse, a bumpkin, unworthy of belonging. Or love.

She and I have gotten to know each other lately. I helped her see her abuse as not her fault, and as a mistake her abuser made. I told her she was brave, and that her heart was loving and sincere. She started to believe me. I want her to believe that she has something worthwhile to say. But she still shies away from the spotlight; she has for decades.

And now, we face another time when she and I will face the spotlight again. In a few weeks, I'll be giving a presentation I created at a national conference in Halifax, NS for the counselling association I belong to. And I'm bringing her with me. I'm being intentional about inviting her to watch, to see how people react, to experience this honour with me. 

Now, I know that that little girl turned into the woman I am now; I haven't lost my marbles (haha). However, that small child, that afraid little girl, is real to me. I can see her plainly in my mind. She learned early on to cower ... because cowering made her safer. And I'm trying to teach her that while cowering kept her safe then, it doesn't serve her well now. I've been giving her something she never got: compassion, love, and a sense of belonging. She's learned to trust me (that is, grown-up me) ... but she's still unsure about others, even though I have been telling her that they care. Now, I believe she needs to SEE that caring, in action, to understand that she IS worthy of love and belonging, of positive attention, of the gratitude she never got.

I'm not sure if any of this has made sense. I just needed to write it.