2017 in review - Gratitude month by month

Every December 31, I take the calendar out and transfer birthdays, anniversaries, and appointments onto the next year's calendar before storing the current year's calendar away (I have calendars going back several years, which would come in handy were I ever to write my memoirs, haha!)

If I could choose a word to describe what 2017 has been for me and mine, it would have to be 'miraculous'.  Rather than theme by theme, I thought I'd take it month by month to show you how that has played out in my / our life.

January

January 4 - My brother had surgery to remove about five inches of bowel due to having stage 1 colon cancer. The surgery was successful; they got it all, and he did not have to have chemo. While he was in the hospital, he had a gall bladder attack and because of the recent surgery, they only put in a drainage tube instead of removing the gall bladder. He still has the tube... but more about him later.

January 9 - I had surgery to remove my reproductive organs due to some pre-cancerous cells inside my uterus (discovered the previous October via a biopsy done under anesthetic). I was off work for about 5 weeks. After the initial recovery period, I discovered that I had more energy and slept better at night than I had been. 

February

February 16 - I returned to work after my surgery January 9. I had been team leading since October so was returning to that - what a wonderful experience! 

February 27 - My post-surgery consultation / followup - my OB/GYN told me that everything was fine and that I had far less chance of getting other kinds of cancer (e.g., breast) now that my uterus was gone. :) 

February 28 - I celebrated eight years in recovery from codependency (see my "What is Codependency" tab). It might seem like a small thing, but my life is so much better now that I am living a more free lifestyle.

March

March 14 - my husband had an MRI on his right shoulder to determine the cause of his shoulder pain and weakness that he'd had ever since a shoveling accident last winter.

March 25 - my husband celebrated 8 years in recovery from alcoholism. Every day is a celebration really, but this is one of those landmarks we remember every year. 

March is a hard month usually; we have had our fill of winter by the time New Year's rolls around, so in March, with winter showing no sign of abating, things can get pretty exhausting and discouraging. A couple of well-timed vacation days near the end of March tides us over until the next long weekend - Easter (which was in April this year.)

In mid-March, my brother had to go into the hospital to stabilize his sugars (he is an insulin-dependent diabetic and the sugars, due to stress, were around six times what they should have been). He was home again in a few days, but while he was gone, we had to rely on extended family members to take up the slack of caring for my mother. Some of these family members got tired of doing that. It was the beginning of the end of a lot of things - though we didn't know it at the time.

April

April 14 - Good Friday - A day-visit to see my mom and brother showed us how badly Mom's dementia had deteriorated since our last visit a few months previous. I was seriously starting to worry that she might burn the house down by leaving a burner on or something.

April 17 - Easter Monday - My brother again had to go to hospital to deal with a cardiac incident. He was only in the hospital for about a week, but while he was gone, those extended family members, who I mentioned earlier, put their sinister plan into motion.

April 19 - Due to lies told to a Social Worker, Mom was taken to hospital "for her own safety" since my brother was still in the hospital and the extended family members didn't want to care for her. As a result, she became a "court-ordered" patient and wheels were put in motion to keep her in the hospital until she could be placed into a nursing home.  

May

May 26 - My husband had his appointment with an orthopedic surgeon regarding the MRI he had undergone in March. The surgeon told him that his bicep muscle had mostly torn away from his rotator cuff in one spot and that he would need surgery to repair it. The wait times for this would be about a year or so. They finally settled on August 2018.

May 29 - My brother received a writeup of the allegations that put Mom into the custody of the province.  He showed me a photo of each of the pages. Everything they said was either a bald-faced lie or a gross exaggeration and misinterpretation of the facts. He had no money to fight it in court. We advised against fighting since it was the province (not the extended family members) who would gain financial control over Mom's affairs.

June

June 9 - After two years of talking about it, we finally got our tub "replaced" - we used Bathfitters and we were very pleased with the results! This was a big deal because the old tub (a purple one from the 1970s) was such an eyesore and so was the badly done tile job around it. Now we have a sleek, easy-to-clean tub and shower surround. 

June 16 - I started seeing a counsellor to help me deal with the stress of the situation with Mom and my brother. The therapist and I immediately clicked!

June 20 - My husband and I celebrated 36 years as husband and wife. 

July

July 10 - I headed out to Calgary for a 2-week intensive finale to my Group Counselling course. A good friend of my daughter's picked me up at the airport and drove me to campus. My room-mates were pretty good and even took me to the grocery store that afternoon so that I could have food for the coming week. Such a contrast to the last year I was there!

July 13 - That friend and her partner had me over to their house for the BEST steak dinner I have EVER tasted - and the partner even helped me with a computer problem I had been having. :)  They offered to take me out to breakfast on the 16th - Arielle's birthday (she would have been 25). 

July 15 - A classmate contacted me and drove me out to Canmore - close to the Rockies - and I saw the mountains up close and in person for the first time ever. NO comparison to only seeing pictures!! it was a spiritual experience for me mostly because Arielle had seen a similar sight when she and a friend drove to Calgary from Edmonton about a month before she died. 

July 16 - Breakfast at Denny's - what more needs to be said?  It was busy because it was a Sunday morning, but the food was great and my daughter's friends put themselves out to make the day a little more bearable for me.

July 21 - The flight home. My daughter's friend's partner drove me early to the Calgary airport, so I spent a LOT of time waiting at one airport or another. I was supposed to arrive at 11:10 pm, but due to the absolute worst thunderstorm of the year on the Eastern seaboard (affecting flights leaving LaGuardia in NY), my connector was delayed.  It arrived two and a half hours late in Toronto, and then when it finally took us to the Maritimes, the same storm was affecting our ability to land in PEI (five inches of rain on the runway). We diverted to Moncton, spent an hour inside the plane while the pilot was on the horn with officials in both places, and then finally took off to land in PEI around 3:15 am. I could have kissed the tarmac when we landed here! 

August

I spent more time than usual in the sun. After my time in Calgary and the intensity of Summer Institute, I welcomed the chance to relax whenever I could. Aside from a dental filling and a couple of birthdays, there's nothing written on the calendar for this particular month. 

However, my daughter did decide to take a course through Athabasca University online, a precursor to eventually transferring the credit to UPEI. It was a big move for her psychologically, and although she was anxious, we were confident that this was a good move for her.

My brother was diagnosed with cataracts.

September

I began a four-month hiatus from school. No courses that I needed were being offered in that term, so I paid my program fee (to hold my place in the program) and then prepared to fill the time with something else. I must admit that I didn't know WHAT I would fill the time with, so September I spent a lot of time lurking on Facebook, playing computer games, and watching television: luxuries I only sipped in moderation when I was taking classes.

I took to calling Mom about 3 times a week, and my brother at least once a week. During this time, he was learning how to manage a household on his own for the first time in his life, so I was giving him tips and tricks to getting things done and bills paid on time. I also helped him stick-handle through the process of trying to get quotes to put in an oil-fired furnace to replace the wood furnace he could no longer tend (he had qualified for a grant for this).

October

Photo "Young Plant" by amenic181 at
www.freedigitalphotos.net

I rediscovered crochet in October, and began one birthday project for my brother, and started my Christmas projects. Finally there was something productive to do with my evenings and weekends!

October 9 - Thanksgiving - We had friends over and I cooked a turkey with all the trimmings, including some deep-dish pumpkin pie I made myself. The food was good, but the company was better!

October 26 - What was to be a trip to NB to take my brother to an ophthalmologist's appointment (pre-surgery) ended up with me going to the Moncton hospital after learning he'd had a heart attack the day before. Fortunately the damage was minimal. Yet he was still having chest pain.

I remember having a great visit with him, including telling his kidneys to return to function, and telling his pancreas to behave themselves, in preparation for an upcoming cardiac procedure. 

While I was there, I visited my mom, who was still in the hospital awaiting placement, and who thought she'd only gotten there about a week ago (it had been over six months.) It was a good visit, not at all like I might have feared.

October 30 - My brother had his cardiac procedure and it went perfectly! They put in two stents in the vessels on his upper heart muscle because there was a 90% blockage in one and a 70% blockage in the other. His kidneys didn't fail and his sugars actually improved with the decrease in stress.  Within hours, all the pain was gone - just gone!! - and he was able to get a full breath and even was able to walk for more than 50 feet by the end of the following day!

He was still waiting for the furnace project to get going, however, after he got back home. He was keeping the electric thermostat on 58 degrees and using the blanket I had crocheted for him to keep warm when the temperatures started dipping. The hospital stay gave him a reprieve from that, but the weather wasn't getting any warmer and with a badly insulated house, things were pretty chilly.

November

After involving the NB Ombudsman as well as some creative plans to get the furnace work done, the grant people finalized the agreement with an installer to put in the furnace. They started the work on my brother's birthday, near the end of November. 

Interestingly, the nights didn't get as cold as they usually did that time of year. 

He also made arrangements through Social Services to get transportation to and from medical appointments. This was a big relief for everyone!

My daughter decided to attend UPEI as an "unclassified student" while she was taking some upgrading to qualify for a program there: the Kinesiology degree. This was a huge deal for her.

December

December 3 - My brother's first delivery of furnace oil happened early that Sunday morning and he texted me, "Sis, it's 68 degrees and so warm." 

December 8 - Mom was moved into the nursing home. At last count she seemed to be settling in, but the staff was discouraging visitors that she would associate with her going back home. As yet, we have not yet seen her.

December 11 - Many discussions with UPEI Registrar and Student services later, we had the joy of seeing our daughter register for a Kinesiology course at UPEI to start January 3, 2018. 

December 13 - My brother had an appointment with his surgeon (the one who did the cancer operation). She's been monitoring his creatinine levels to give her an indication of how well his kidneys are doing. Before the cardiac procedure they were at 600 (the high end of normal is 113). He told me on the 13th that even though the doctors could not explain how, his creatinine was now at 225, and that he was in the best shape he has been in for several years! What a great Christmas gift!

December 23 - A good day-visit to see brother - we gave him his Christmas gifts. He cooked a scrumptuous meal and enjoyed our company to the full!  He still has his drainage tube but now has a target date for the surgery to remove it (and the gall-bladder): March 2018. That is quite the relief. We are still waiting for word from the ophthalmologist on the date for the cataract surgery. They want to talk to his cardiologist first. Hopefully it will be sooner rather than later.

December 25 - This was the first Christmas we have spent alone (with just the 3 of us) since Arielle passed away. It appears we were ready for it - a quiet one with just us - and a good turkey dinner to share and lots of leftovers!

December 26 - Shepherd's pie with friends who came over for supper and the evening. A good time was had by all! Precious memories built and exchanged, and nobody left the table hungry, haha.

December 31 - Today. We are planning a quiet evening at home with a dear friend.
~~~~~~~~~~~~~~~~~~~~~
2018

The year ahead looks bright with many significant changes coming up and lots of bends in the road ahead. Yet all we have seen, as R. W. Emerson said, leads us to trust our Creator for all we have not seen.

I wish my readers all the absolute best of all things for 2018.

The Sounds of Silence

I've spent most of the day feeling quite down. 

Aside from the fact that I have been concerned about someone I can't seem to reach for some reason, or maybe because of that (in part), someone reminded me this morning of that gnawing feeling in the pit of my stomach that I felt when my youngest was living in Alberta. It was the feeling that I'd never see her again: a feeling of dread, of fear (even panic), and of anger that there was nothing I could do to change it.  

So I've been flooded with memories of those days back in 2013, and I've been allowing those feelings to come to the surface so that I can feel them and deal with them. It's hard, but it's better than stuffing those feelings down underneath the surface, and having them pop up unexpectedly.  

Permeating all of that is also the unspeakable sadness that goes with the outcome of those days - she never made it home alive. 

Even though the television has been on and there is that noise in the background, there is a very real sense of stillness, a feeling of incredible silence, of unspeakable isolation. The background noise of grief took center stage for today. And I chose to let it come, and I breathed and felt my way through it.

And it is still going on. It will last however long it lasts, until it's done - another wave-crest in the flood of loss as I just try to stay afloat and ride it out. 

Photo "Lighthouse At Sunset" by
Serge Bertasius Photography at
www.freedigitalphotos.net

Of course it will pass. It always does. Yet it is a journey, a passage from one place to another, this silence, this sadness. Nobody likes to talk about it when they're going through it, only when the "victory" has been won and the yucky parts are done. But this is real stuff. Life really is messy, and sometimes the only victory that can happen is the one-breath-at-a-time survival of the wrenching moments that claw into the soul. It's part of the journey to healing. It's part of embracing life. 

I'm grateful for my husband and my daughter, upon whom I lean when I need to. They see me struggling and - unbidden - they come alongside to help me, just like I've seen them struggling and have come alongside to help them when they needed it. 

And in the silence comes a sort of weird kind of calm. It's a reminder that I've traveled this road before and that I had help then too.  And so - I know that I am not alone, even though it might feel like I am. And because I've been through this before and come out the other side relatively unscathed, I'm going to be okay this time.

Maybe not without scars, but I will be okay. Maybe not today, but I will be okay. For today, I will listen to the sounds of silence and not stifle their voices. Nor will I dwell on them or try to stay here. It will be what it is. It will pass when it passes. And ... though it's not easy, I guess I'm okay with that.

The Next Right Thing

I had a bit of a scare yesterday.

I had planned to drive my brother to an appointment with an ophthalmologist (eye surgeon; he has cataracts) so I went for the 2-hour trip to his place (out of province).  When I got to his house, I realized that he either wasn't there or he was unable to open the door for me. Some frantic calls later, I learned (thanks to a great RCMP officer) that he had been admitted to hospital in a neighboring city the previous day. He gave me the telephone number at the nurse's station of his unit and also his room number. I called and got an update - he was in the cardiac care unit but was stable. The relief I felt that he was alive and being cared for eclipsed the anxiety of what might lie ahead for him.

Photo "Footprints On The Beach Sand"
courtesy of foto76 at
www.freedigitalphotos.net

Since I was already there and within an hour's drive of the hospital he was in, I decided to go to see him, which I did. Braving the open highway, and multiple exits to the city I was going to, was worth the extra stress of making the trip!  He was in good spirits and so glad to see me! He was hooked up to an intravenous tube with a couple of extra bags - nitro-glycerine and heparin - and to heart, blood pressure, and oxygen monitors.  It was comforting to see the numbers and the regular rhythm of his heartbeat on the screen.  We chatted for a while about this and that, and I decided that while I was in the building, I would go and see Mom, who has dementia.  I promised my brother that I'd come back and see him before I left the building to go home.

I had called Mom's unit so often, and hospitals are laid out in pretty much the same way on each floor, that it was easy to find her area after having been to his. When I got there, I found her in a common area with a few people. She was playing Skip-Bo, her favorite card game, and trouncing everyone while she was at it. She barely looked up when I came in, except to express surprise to see me - which is normal for her. As I chatted with one of the other visitors, I watched while her right hand repeatedly picked the brightly-colored cards out of her left and played them on the discard pile. She was still unbeatable. And when she won, she didn't show pleasure, only a slight disappointment that the activity was over. And then she forgot she had done it. It was like she was home, except that ... she wasn't.

Once one of the people left, and we herded Mom back into her room (reminding her three times to not forget her walker), I shared with the other visitors (honorary Bro and Sis) the news about my brother, while managing to keep Mom from cluing in to it.  That's easy these days because she doesn't hear well and only can focus on one person at a time: whoever is in front of her usually.  I got a chance to visit with all of them, though. As visits go, it was pretty good. :)

Later, honorary Bro and I went down to see my brother in the CCU while honorary Sis and Mom kept playing cards in her room. The events just flowed, like they'd been prepared for me in advance, and all I needed to do was walk into them and take my place. Seeing her didn't fill me with dread or sadness; she was still Mom. 

The whole day was - I was going to say easy, but that isn't the right word. I was just ... living in each moment as it came without wondering where the next one would lead. It was an odd experience, unlike any other, but it felt completely natural. I just did whatever came next. Naturally.

"Do the next right thing" is a slogan that I have known about for close to nine years. The beauty of it is that word "next" because it implies that there is always a next time, and a next, and a next. Yesterday was supremely stressful and there were a lot of ups and downs in it (including the harrowing drive to the hospital at high speed on fairly unfamiliar roads among unforgiving drivers in high winds that buffeted the little car I was driving). But each segment of the day - including the drive and all the components of it - was one more step in doing "the next right thing."  I have rarely been more aware that I was exactly where I should be and doing the very thing that I was meant to do in that moment. It was like those moments were being orchestrated, conducted by a Master Designer, to meet not only their needs, but my own in the process. 

It Still Counts

I was awake around four this morning. Those who have Post Traumatic Stress Disorder will understand when I talk about re-experiencing and how that interrupts sleep cycles and causes all sorts of nasty stuff like irritability, anxiety, fear of crowds and public places, and hypervigilance (the obsession with staying safe and keeping your loved ones safe). And the ones fortunate enough to have benefited from therapy know that talking about their trauma is a necessary part of their treatment because they process it instead of blocking it out.  

So I guess I had better warn my readers that I am about to describe a traumatic experience. If you can't deal with that right now, you are welcome to stop reading at this point. If you want to continue, you might want to grab a tissue. Especially if you're a parent.

Four years ago today seemed like any other day I had spent since my youngest daughter moved to Alberta and eventually ended up on the street, living in her car.  I was always wondering if she was safe, doing everything in my power to give her the tools she needed to get even half a chance out there. 

The previous evening she had asked for some money so she could sleep in a motel and have a shower to be ready to view an apartment the following day. I agreed and sent it.  

But she never got there.

All morning I was texting her from work, reminding her of her appointment. No response. I tried calling her again and again. No response. I gave up around 12:30 because I figured she was on the road by then.

She wasn't.

I remember what I had for lunch because I was eating it when the phone call came from my husband at 1:10 pm.  He told me that she had been in an accident. No, she wasn't okay. It was head-on at highway speed. She had died instantly.

I felt as if someone had drop-kicked me in the stomach. My breath came in gasps - I wanted to scream the words but they came out in disbelieving sobs instead. "Oh my God.  Oh my GOD!  My baby! My baby is ... DEAD!  Oh God!"

Suddenly the world seemed very, very small. There was barely enough room in it for me to breathe, almost like those scenes from horror movies where the camera gives an extreme closeup and there's a delay, an echo, in the words and actions - and they feel jerky, disjointed, surreal.

"Do you want me to come pick you up?" he patiently asked me after I stopped talking ... if you can call what I was doing talking. 

"Up, oh yes, pick up. Yes that would be good."

"I'll see you in about 20 minutes. Okay?"

"Umm, yeah. Okay.  Umm, drive safe," I said automatically. 

People at work had formed a small crowd around me, I noticed as I hung up the phone. Someone handed me a tissue. Apparently my face was wet. I can't remember who all was there, but I know there were concerned faces all around me.  I heard voices expressing sympathy - but they sounded like they were coming from the other end of a metal tube. 

I was still clutching what was left of my lunch - a spoonful of peanut butter and a couple of dried mango slices - as my manager suggested that I go to her office. She guided me there, sat me down in a chair, and waited with me for my husband to arrive.  She expressed her condolences, and asked if there was anyone she could call for me to let them know. I obediently gave her the number for the church I attended. She called them and told them the news while I ate the rest of my lunch - which felt drier than usual in my throat - because all I could think of was that I needed to keep my strength up, that my family would need me to be strong. So it became all-important for me to finish eating. Strange what trauma will do to the mind.

As we waited after my manager hung up, she leaned over and hugged me, rocking a bit, and started to sing softly in my ear, "Come to the water, stand by My side, I know you are thirsty, you won't be denied...I felt every teardrop when in darkness you cried, and I want to remind you that for those tears I died..." - the chorus of a song that (there was no way she could know this) I sang with my brothers as a teen. Of course that helped to set off a fresh wave of tears. I appreciated her expression of caring; I needed it!

When my husband arrived, those with clearer heads met him at the door. Others ushered me downstairs to meet him. One dear lady took charge and arranged to have someone drive us home - my manager took the front passenger seat and let us sit together in the back - while someone else drove behind us in a car and followed our van back to our house. 

These memories are fresh for me today because - well - it's one of those anniversary days. As I think back and remember, and relive those moments and the grief that overwhelmed me during those days and weeks that followed, the one thing that overarches everything is the one thing that heals the most: the love shown to me and to my family from all who knew us. And I mean all, from my best girlfriend who took my daughter's death as hard as I did, to the co-workers who all were so affected by it, to the doctors who worked in our area at my work, to those who came to the wake and to the funeral, to the hundreds and now thousands of people who have read my blog post about it (look in my archives on this blog for my October 24, 2013 post). 

Image "Snowflake Background" by oana roxana birtea
at www.freedigitalphotos.net

Those who know her story (which I told in that post I mentioned) know that she lived her life by the motto, "Every Snowflake Counts" - which to her didn't mean that everyone is unique and special like a snowflake, but that every bit of good that a person does, no matter how small, is helpful. It counts. There is nothing insignificant. 

It still counts. Folks who know me well, know that 2017 has been particularly hard for me emotionally, partly because if my baby girl had not had that accident, she would have turned 25 this year. So this anniversary date is a bit more raw than one might expect after four years. Grieving is not something that one ever stops doing; it takes a different form after a while, but it never goes away. 

My friends have been so supportive and so compassionate - and so patient - toward me and my family. To them I say, it still counts. Your love and your kind thoughts and words do not go unnoticed; I appreciate every bit of good that you intend and that you do and say. And I just wanted to say it.

Thank you. Thank you all. :') 

The Last Person

I started a transformation journey in 2009. Part of that journey was learning that other people (and that I) had boundaries, and that nobody had the right to cross those. Nobody. And, that in some cases, even with the other person's permission to do just that, it's not a good idea.

But one of the hardest facets about this journey - and it has many facets, like any jewel - has been learning self-care and self-compassion.  I tend to be way harder on myself than I am on others.  As my expectations of other people have lowered to reasonable levels, you'd expect that my expectations of myself would also decrease.  Mmmm, not so much.  If I hit anything less than perfection, I am the first to criticize myself and beat myself up inside over not living up to how well I wanted to do something. So learning self-compassion has been ... shall we say ... a process rather than a destination. I get better at it, then slip back, have to learn the same lessons over and over, and eventually, the marker for "normal" moves a millimeter.  It's progress, but to me it seems glacially slow! 

So, sometimes I have to force myself to do things for myself that I would not hesitate to do for a friend. In fact, Dr. Kristen Neff said something in a video I saw this past summer that stuck with me. She said something like this : if you wouldn't treat someone you loved and respected a certain way, then why would you treat yourself that way? Being compassionate toward yourself, she said, connects you with humanity because as you give yourself a break when you make mistakes, you can be more compassionate toward others when they mess up. (For more information on this, visit www.self-compassion.com ... somewhere on the site are the videos I watched; each one is about 10 minutes. 

Photo "Mirror" courtesy of Arvind Balaraman
at www.freedigitalphotos.net

And self-compassion goes hand-in-hand with another similar term that I've been learning about too: self-care.  Self-care can be just as much doing nice things for myself as it is in not doing (or saying) bad things to myself. So it can include staying away from individuals, groups or situations that are bad for my (mental and/or physical) health, but it can also mean taking steps to look after my needs for sleep, nutrition, and activity, among other things. Lately, I have been taking time out for myself - not to "do" anything in particular, but just to recharge and to follow that old McDonald's slogan: "You deserve a break today..." I don't always practice this, but I find that if I don't, I end up being more irritable and more overwhelmed by the basic day-to-day of life. I cannot give away what I don't have. And so, I need to cultivate a friendship with the last person I expected ... me. I need to be my own friend.

That flies in the face of everything my own culture drummed into me when I was a child. Others first. Self-sacrifice. And as noble as those things sound, I have found them to be fundamentally flawed, because I used to live like that. I was the last person to eat, the last person in line at the store because I would let others go first, the last person to speak up or to speak out.  And by the time I got around to looking after myself, there was nothing left, and there was no energy left in me ... and I just didn't. Or I took the leftovers of what everyone else didn't want. And I got more and more stressed, resentful, and burnt out. 

When I started giving myself permission to look after me first, lo and behold, I had more energy to give to others, and my stress and resentment went way down! It amazed me how that worked. Instead of becoming more selfish, I became more able to be there for someone who really needed me when the time came, less distracted by my own needs and more able to concentrate on theirs. (Huh. How 'bout that.) 

Moreover, I found that I was better able to accept others' care for me instead of brushing it off and saying I didn't need it. Quite effectively, that gave my loved ones the gift of being able to pour into my life, a gift I had been denying them by trying to be too self-sufficient. And I've been learning that when I accept their care for me, and say "Thank you," I give them the added gift of feeling pleased because they had made a difference in my life. Because they love me. And that is so amazing to the last person who would have expected it: me.

T.L.C.

The night before last, there was a "cat explosion" in our house.

They happen frequently. The three cats are sitting within sight of one another, and nobody knows who starts it, but it seems that all three of them jump as if zapped by electricity and they all race off in different directions. It's comical to watch! 

But this last time, someone zigged when they should have zagged. And one of the cats got hurt.  Of course, cats are not all that good at showing that they are in pain, but the kitty in question did have her hair all poofed out longer than usual for this type of event. Later, we saw her limping - and we thought she'd hurt a joint in her ankle in the back. We helped her, made a little bed for her in a large dog-crate with some litter in there and a couple of food dishes, so that she wouldn't be tempted to try to jump up on things or do too much, and today, she went to see the vet to get checked over. 

It turns out that it was a hip problem - a stretched ligament or tendon most likely - and the vet gave her an anti-inflammatory shot and gave us some medication to give in her food. 

This is our little Eris - named after the
goddess of Chaos in Greek mythology.
The photo was taken in April 2016.

We were concerned that her "brothers" - who are both bigger than she is - would take advantage of her weakness and try to bully her.

Quite the opposite. There has been quizzical trilling, sniffing, and reaching out paws to her, and one or the other of them is not far from her crate, keeping her company whenever they can. The oldest perched on her crate this morning, and was there most of the day (except for when she was at the vet's) guarding her and letting her know he was there by occasionally hanging his paws in front of the door, letting her sniff them. 

Both of the boys have been very gentle with her, and have not tried to engage her in playing (which to them means roughhousing!) They have stayed close, and have changed their favourite perches so they can see what she is doing in the crate.  What a tremendous model of tender loving care! The whole family has been so concerned for her, looking after her, making sure she is fed, comfortable, and settled down. The vet says that she will need to take it easy like this for another week and a half, and wants to check her over again on Monday just to see if there has been any improvement. 

Such care and love expressed toward a little seven and a half pound ball of cuteness... who has melted our hearts over and over again... and seeing her brothers take such good care of her is so heartening. It's so not what we expected, such a surprising display of concern and caring, that we are in awe.

It's so encouraging. I'm so grateful to have them all in my life. :-D



 

Pariahs in Pain

Watching someone day in and day out who is in chronic pain (like my daughter is - fibromyalgia, stage III osteoarthritis, temporomandibular joint dysfunction, asthma, and chronic cluster vertebrobasilar migraines) can make a person question the purpose of pain and wish that pain didn't exist. 

However, as unpleasant as pain is, it serves an important purpose. Pain is the body's way of signaling the brain that there is a problem and that it needs attention. Without the ability to feel pain, one might get burnt (severely) without knowing it, or ignore a serious - perhaps life-threatening - condition (such as a heart problem or a severe infection in the body that could cause respiratory failure!)

Pain is intended to be an early-warning system that tells us that something needs our immediate attention. When we heed that warning, we can get help before a problem becomes worse, even fatal. When we ignore it, the pain continues and the problem can become much more serious. When pain is chronic, not only does the body suffer, but the mind does as well. Scientists have linked chronic pain to a host of mental illness, most notably depression (see this link to the Mayo Clinic).

When the cause of the pain is obvious, sufferers frequently receive empathy and understanding from those in the medical profession and among their friends and acquaintances. When the pain is hard to pinpoint, or there seems to be no physical reason for it, the empathy tends to fizzle, and judgment begins.  A prior physician firmly believed that our daughter's pain was a clear-cut case of malingering ... which means that he thought she was faking her pain to get benefits. Having lived with her all her life, we knew differently, but unfortunately, this is the reaction some people have to face things that they cannot explain away with pat answers or banish with pills. People want to be around beautiful, healthy people with no problems. They don't want to hear about the daily struggle of having to get out of bed and do things that they take for granted. They ask how you are, but they don't really want to know the truth; it's just a polite noise people make. Rare is the person who will stop and really want to know how you are. It's human nature to want to avoid unpleasant things. The sad side-effect of this is that those who suffer chronic pain or disease (especially if the disability is 'invisible') become the ones nobody wants to associate with, or pariahs. A pariah - for those who don't know - is an outcast, a non-person ... a social leper.

In the same way, those who suffer from chronic emotional pain can also end up becoming pariahs. Emotional pain is like physical pain. Its purpose is to alert us that something is wrong and needs attention. But our society is so performance-oriented and perfectionistic that often, these early warning signs get ignored and the pain goes underground ... only to resurface in areas we weren't expecting.  

Photo "Lonely Woman On
The Beach" by Sira Anamwong
at www.freedigitalphotos.net

Nobody wants to be around someone who is sad or angry, and so we sufferers put on a mask, pretend, and ignore the pain. If folks were more accepting, and more approachable, we might feel more free about being honest about how we feel. But we've learned that the reaction of a great many people is one of condemnation. Sadly, folks seem to only want to know about our pain AFTER it is done and we have dealt with it and moved on, or overcome it. Perhaps if we had just dealt with it and discovered why we were in emotional pain and start to look after ourselves in those areas, the pain might not be there or be as intense. 

Yet by the time it becomes chronic, ignoring those early messages of emotional pain has made us numb to them. The saddest part is that the numbing also numbs the happier, more pleasant emotions as well; our emotional centre can't tell the difference between "good" and "bad" emotions - they're just emotions. So to protect itself, it shuts them ALL down.  The only ones that tend to get through now are the stronger, more violent emotions - like anger, fear, and sadness. Peace and joy and love get suppressed, or worse yet, warped by being filtered through the anger, fear and sadness.

Enter chronic depression, anxiety, and/or post-traumatic stress, depending on the circumstances that led to our pain. Wow. Talk about being a pariah? NOW we're in for it. As intolerant a some folks can be of unexplained physical pain, they seem to be doubly intolerant of emotional pain. This attitude of intolerance is toxic to us. So we withdraw. We isolate. And that just cements their opinion that we aren't worth the effort. They move on to more pleasant encounters. And we get left behind. 

I identify with those in pain because I am in pain. My disabilities are invisible - and sometimes I feel like I am invisible too. All of society seems hell-bent on criticizing and condemning things about me that I consider strengths: my introversion, my sensitivity, my empathy, and the list goes on. I've battled these prejudices all of my life.  And now, because of my invisible ailments like multiple chemical sensitivities, degenerative disc disease, and the like, I find that I am just another pariah in pain. I feel as though I have to explain over and over again why I can't go to events that "everyone" is going to. People assume that I'm antisocial, when truth be told, I just don't want to have to battle invisible clouds that mean nothing to people who aren't affected by artificial scent. Or, I don't want to stand on cement floors and ache for the next three days.  Little matter the reasons. It's part and parcel of the kind of "if you are not like us in every way, then you are not one of us" reasoning. (Don't get me started on that one.)

What am I saying? 

It's okay to hurt, if you hurt. Pain is not a bad thing. It's unpleasant, to be sure, but it is not bad in and of itself.  It is a signal that something is amiss somewhere, and the sooner we pay attention to that, and get help, the better off we are. But just because someone suffers (physical or emotional) pain on a regular basis, that doesn't make them evil or to be avoided or judged.  It makes them in need of understanding, compassion, and acceptance.

Acceptance is key. I wish we all were better at it, but it's not something that comes naturally; we have to work at it. But I figure, until more people are willing to come forward, like I just did, and talk about it, we'll just keep on being pariahs in pain.

Quiet

It's quiet. But this time, the silence feels different than at other times.

I remember other times, other moments, even other places. For example, a week ago, as I was sitting in my dormitory room in Calgary, Alberta, with my roommates gone for the day and me finishing up breakfast, the quiet was deafening. I felt isolated, alone, trapped. I was thousands of miles from everyone I held dear, eating breakfast alone without their company, without their laughter and conversation, making do with my keyboard tray and my laptop as a makeshift table, and feeling incredibly homesick. Tears began to sting my eyes as they rose to the surface. 

Of course, it wasn't as bad as one time (one very LONG time) when I felt so very alone. My youngest child had died and the funeral was over, and the sympathies from well-wishers had tapered off, and I was (yes) surrounded by my closest family and closest friends ... but knowing that the tick, tick, tick of the clock would never again be interrupted by her raucous laughter or her crazy antics ... made the quiet an open sore.  I wanted to play the last video she sent to me just to hear her voice again, but it made my family sad, so I sat in the quiet - the cruel, taunting quiet - and suffered loss that no parent should suffer. 

A few days previous to the breakfast incident in Calgary, a classmate took me to "see the Rockies" - we drove up to Canmore, Alberta, (see my previous post) and I was increasingly in awe of the indescribable vastness of these wondrous creations, the closer we got to "The Three Sisters" peaks. Even though most of the time my classmate chattered away, in the core of me there settled a blissful quiet, where I was able to commune with my baby girl because she had seen the Rockies this close too, about a month before she died. It was somehow a shared experience, and in the inner quiet ... I felt close to her in a way I had not felt for a long time. And I knew she knew it, and that she was deliriously blissful and at Home, more than she ever could have felt here. I knew that she was okay, that her restless, anxious days were done. Happy tears slipped their way past my lower eyelids and slipped unhindered down my cheeks.  The quiet healed me, soothed me, comforted me. 

A black squirrel - July 19, 2017,
on the Mt. Royal U "Lincoln Park"
campus,Calgary, AB.
It nearly blended in
to the tree trunk...

A hare munching on fragrant white
clover, July 20, 2017

In Calgary this year, there were also times during the ordinary hustle and bustle of the day, when I sought out the quiet and made it part of my day; there, I could recharge my emotional batteries and gain strength to face whatever task was ahead. There was a lovely park on campus where I would linger either on my way to or from class, and sometimes both... being there seemed to restore my soul. Perhaps it was because it was so beautiful. I watched the water from the man-made waterfall tumble over the rocks and land in a little pool, close to an arbour with a little park bench inside; I smelled the roses and drank in their striking fuchsia, bold musical tones that sang to my eyes and caressed my nostrils in the breeze.

I was particularly drawn to the wildlife in Alberta. I got to see some amazing creatures there; to the locals they were a dime a dozen, but to me, they were remarkable: magpies, gophers, and hares abounded. Even the squirrels were different than at home: larger, and black instead of reddish-brown. They were fast too, so I was pleased to get a photo of one (see above, left). The quiet they produced in me was tender, almost a communal feeling. I felt somehow at one with my surroundings. It made being far away from home not quite so lonely. 

But the quiet today is different still.  It is a calmness, an assurance that all is right, that I am where I am supposed to be, that my family is not far away, and that I can rest and relax without worrying. I can close my eyes and know that when I open them, I will see the familiar - the jumble of cat toys and pillows, my books and papers, and the occasional cat walking across the floor or playing in an empty cardboard box. 

I like this quiet best of all.

Giving and Receiving

Today was a full day, especially because I didn't think I was going to be doing much at the start of it. All I wanted to do was head to Walmart and pick up some supplies / groceries for the rest of my 2-week stay in Calgary (I head back this coming Friday and today is the Saturday prior to that.)

It didn't start too well in a sense. The cab driver was wearing heavy scent, so I went to the store (an 8-minute drive) wearing my face mask. I tipped him for choosing the most direct route there... and then spent the next hour wandering the aisles of the store in my mask (lots of scent clouds, it was Saturday) looking for various items (the last one, pepper, took me ten minutes and even then I finally had to ask someone. It was in the meat aisle by the way...). I paid for my stuff, called a cab in a different company, and submitted to another drive back with my mask on, with another pee-yew cabbie who (again) took the most direct route and even helped me with my huge / heavy shopping bag. (I'm done shopping alone without buying a sturdy bag... last year was enough.)

After I got back though, had some food and took an Advil for the killer headache the scents gave me, and talked for a while on the phone with my brother, and then with my husband, I saw an email message from a classmate asking me if I would like to spend some time together. I agreed and she picked me up for a drive out to see the Rockies!

"The Three Sisters" - near Canmore, AB, July 15, 2017

Yes ... I took that picture only 2 hours ago. The peaks here are called "The Three Sisters" and I took the photo from inside the vehicle as we were driving!

Seeing the mountains up close like that was ... well, the best word I can think of is ... spiritual. 

I felt very connected to my youngest daughter, who saw these mountains in late September 2013, only 3 weeks or so before she died. It was like she and I got to share the experience of the majesty of that place. The tears started to fall as I could almost hear her say, "It's okay Mom. I'm okay. Everything is going to be fine."  And it was fine. 

My classmate gave me a wonderful gift, a gift that meant so much to me. And all it costed her was time. Time she took away from other things in her life so that I could have a good experience in Alberta. She had no ulterior motive. She honestly cared about how I felt. And all I needed to give her the joy of giving was to receive. Fortunately, I received so very much when Arielle first passed away - so much love and so many outpourings of giving, that I had learned to receive... and so I gave her the gift of my grateful acceptance of her gift.

The world is a funny place - and as much as it is filled with horrible, unspeakable things, it also has people in it like this lady, and my dorm-mates who invited me to come with them to the grocery store my first day here, who helped me take my stuff into the apartment and cleared a space for my food. And so many others here - the friends of my other daughter who met me at the airport and drove me to the residence (saving me $50 in cab fare) invited me to their place last Thursday night for the most tender sirloin steak I have EVER tasted, done via a "sous vide" method. WOW. And when they learned that tomorrow would have been Arielle's 25th birthday, they offered to take me to breakfast at one of the many Denny's Restaurants here (something we don't have where I live) to start the day off right, even though one of them has to work tomorrow at the other end of town (a 30 to 45 minute drive depending on traffic).  They are also planning to take me back to the airport on Friday. Could it get any better than this?

I feel so blessed.  It's a way better experience than I ever dreamed it would be, being in Calgary this time. And as I head to bed, I feel as though this has been the kind of day that restores the soul. Even though it might not have started off well, a simple gift - the gift of time - given and received, made all the difference.

Unspoken

A year ago today, my world got rocked. 

No, I don't mean in the way that someone made my day or anything like that. I mean, it was rocked. It was hit by rocks, knocked off its moorings, blindsided, and so much so that for weeks, even months, I was unsure of anything anymore. 

I have thought about the experience often since then, painful as it is to do so, and all I can figure out is that I was a victim of - or more likely a participant in - a miscommunication that destroyed a promising friendship. And it all came down to expectations. UNSPOKEN expectations. 

You see, I had planned to stay a few weeks with this person while I was out of town. I was willing to pay for the cost of the groceries I would be using, and I was so grateful for their generosity in offering me a place to stay at less than I would have paid for regular accommodations. 

But, well in advance, every time I would mention or even ask what this person expected to receive, that person changed the subject.   They preferred to joke around - and I could take so much of that ... and then it became so much that I had to just make an excuse and go do something else. And this was before I even got there.

We should have talked. We should have talked about EVERYTHING. 

This person's idea of friendly banter was teasing. I hate teasing. Teasing was always malicious when I was growing up, and I grew to detest it. So when this person started doing this, laughing at me, twitting me about my height and telling me to keep up, and making fun of my Maritime expressions, it didn't feel like friendly banter to me. It felt like criticism at best and persecution at worst. 

So one evening this was happening and I started to react. And I reacted badly. And I said things that were, in fact, malicious. And this person was hurt. That was the first mistake... unspoken expectations. Not talking about what things meant to us, where the boundaries were. 

That night before bed, I apologized for losing my cool and then proceeded to explain where I had been coming from. All this person heard was someone who pretended to apologize and then justified her position. Resentment grew, unknown to me. I thought things would be better. But they weren't. They got cold. Real cold. Real quick. The teasing stopped, but it was replaced by stony silence. And I assumed that the person just needed time to recover. But that wasn't it at all. The individual had made a judgement of me and my motivations based on that person's upbringing ... and not mine.

You see, this person was brought up in a home where if you screwed up, you apologized without excuses, you took all of the blame for everything, and then you moved on, letting everyone be the way they were beforehand.  In my upbringing, nobody ever apologized that way; if there were apologies at all, they happened in the midst of people trying to understand why the other person did what they did. So to this person, my apology (which would have been accepted with open arms in my own family) was suspect, and not to be trusted.

But there was something else, too.  There were other unspoken expectations, and rather than talk about them, this person never even considered that I might come from a different perspective. It had to do with the rules surrounding house guests. In this person's home, everyone - even guests - pulled their weight, and nothing was free. The unspoken rule was that you cleaned up your own mess, you paid your way, and you did it without being asked and without expecting any thanks. To do any less was just plain rude and selfish.

Photo "Girls Looking At Each Other" by Stuart Miles.
Courtesy of www.freedigitalphotos.net

I, on the other hand, grew up in a home where, whenever anyone came to visit, they would offer to help out, and my mom would shoo them away from the kitchen and say, "No, you are guests here. You don't need to do that." If they offered money, it was, "Keep your money. Your money is no good here." So I had the unspoken expectation that hosts waited on guests hand and foot. And if a guest insisted on helping, they were profusely thanked (unlike the family members, who never received a thank you, not. even. once. ... but I digress.) If I (as their daughter) tried to do something on my own, my help was not appreciated, and I was often criticized for not doing it right. So I learned to only help when I was given explicit instructions, because to do otherwise would invite parental anger.

So, back to a year ago.  It only took a few days of staying with this person after the initial misunderstanding when things really fell apart. I was not feeling well, for various reasons, but yet the task of carrying this person's things fell to me and I was never thanked. Not. even. once.  I felt as though I was treated like a slave.  All the while, I felt hesitant to do things like wash dishes and put them away, and I was keenly aware that this was someone else's kitchen and not mine. I didn't feel free to move around, and I was kind of scared of the dishwasher - had never used one of the more modern ones, and wasn't even sure how it opened, or where to put things in it. So I stayed away.  

So of course, this person thought I was an ingrate.  

I didn't know how to pay for things; at the grocery store, they would whip out their bank card before I could even speak - and all the time, resentment built on both sides. 

Each of us felt put-upon. So when the blow-up happened, it happened BIG. 

I won't go into the gory details, but when this person finally confronted me, three days later, there was a list of things that took 20 minutes to deliver... and I was not used to confrontation. I apologized; my apology was not accepted and the person accused me of justifying my behavior because I mentioned not knowing how to help and not knowing what the rules were. I paid the person twice what they had already spent on me in groceries. I did not receive any kind of comment or even a statement that it was too much.

Unspoken expectations.

That evening and the next morning, I tried to chip in and show that I was trying to follow the rules this person had laid out, but it was too late. The cold shoulder persisted. I no longer felt welcome. I was on the verge of tears the whole time - partly because of the experience and partly from lack of sleep. Finally, when they left to do something with their family, I arranged to move out and pay strangers to live elsewhere, like I should have done in the beginning. 

The relationship never recovered.  It took a long time for me to recover from the experience. I was not used to not being believed, not used to essentially being called a lazy, selfish liar, even though those words were never used exactly. It rankled that this person could feel this way about me. And to this day, the memory of how things happened and thoughts about what I could have done differently plague me. And all I can figure out from all of it is that if we had just talked about things without judging each other - if we had just listened to each other without making assumptions - our friendship might have survived.

Part of your world

I've been taking some well-deserved time off from my studies to rest, reflect, and recharge. As I ponder the various facets of my life, I find myself thinking about the people in my life and what they mean to me. I try to put myself in their shoes to empathize better with them, and when I got to my mother, I found something quite distressful.

My mom's life sucks.

She has dementia. All of her life, she always looked at folks with dementia and told us, "If I ever get like that, take me out in the field and shoot me." And now she has dementia. And she is watched, twenty-four hours a day, seven days a week. And she is medicated if she gets unruly. And she feels like she is alone: even though people come to see her on a regular basis, she doesn't remember that. She only remembers the last fifteen seconds.

Image "Crying Old Lady" by
imagerymajestic at
www.freedigitalphotos.net

If ever anyone lived in the moment, it is a person with dementia. However, feelings - even if someone doesn't remember the reasons behind them - remain. The feelings affect mood, and can make a person with dementia profoundly depressed. Or anxious. Or angry.

And what makes the feelings? Thoughts lead to feelings, even though the thoughts are no longer remembered. And words - whether spoken by the person or by those around them - create the thoughts. Combined with core beliefs about oneself - things one tells the self through decades of habit - a person who has dementia cannot reason themselves out of those feelings. Reasoning is useless. For someone (like my mom) who has prefronto-temporal dementia, the ability to reason and to make decisions and carry them out is absolutely GONE.  All that is left is the lizard-brain ... the limbic system ... the one that lives totally in the present, that is influenced by words and thoughts but that doesn't remember them; it just feels what it feels. 

So for those who think that it doesn't matter what they say when they visit a dementia patient because "they won't remember what i say anyway", think again. Their MIND may not remember, but their FEELINGS remember. So trying to convince them of the rightness of something about which they have believed all their life is wrong will serve only to frustrate and upset them without knowing why. And after the visitor leaves, it is the staff who have to deal with the fallout: the patient becomes agitated, distressed, depressed, anxious, or whatever, and needs to be medicated more just to make them "manageable." 

So - dear readers - leave your arguments and your opinions home when you visit a person who has dementia. Learn to enter their world - the world of the continual present - and even when they bring up your pet topic, refrain from discussing it. Distract the person toward the positive (not YOUR idea of positive, but THEIRS). If that means lying to them and telling them that it won't be long before they will be going home, then do that rather than tell them that they're going to a nursing home.  To many, including my mom, a nursing home is a horrible, torturous place where people go to be forgotten and to die alone. You can't convince her otherwise; it's too deeply ingrained. Don't even try. 

Phone them. Talk to them, let THEM talk. If you can't physically be there, phone them, send them cards and letters (happy ones!) and little gifts.  Do it often. The hospital / nursing home can be a lonely place. Don't forget them.

If you can be there, then BE there for THEM.  Play cards or board games with them. Watch TV with them. Encourage them, compliment them in every way possible. They are no longer part of your world; accept that. Be part of their world. Enter THEIR reality, the reality of seconds. Not days, not hours, not even minutes, but seconds. Leave your preconceptions and your grief at what they have already lost, and what you have lost with it, at the door. You are there for that person, not for yourself. You are not there to talk anyone else down or to win any arguments.  You are there to brighten their outlook. You are there to make it easier for that person (and for the staff who look after that person) to live a little more pleasantly. 

That is the way you visit those who are infirm, who live inside the prison of their own mind. Don't judge them. Don't judge those they love. Talk only of pleasant things, things that are pleasant for THEM.

Just be there for them, whether in person or not. Just BE.