Existence versus Life

As I write this, my mind and heart is a jumble of myriad tangled feelings, thoughts, memories, and pain – each competing with the other and yet co-existing and draining my strength as they fight their constant battle. This battle? This war? This is grief. This is love when arms can no longer hold the loved one.

Less than 48 hours ago, my brother Ben passed away from septic shock combined with pneumonia that he developed from an infection in a tube-site for his gall bladder. The tube was initially inserted in February 2017 and his surgeon hesitated to remove both it and the gall bladder for fear of him experiencing a coronary on the table. He had atherosclerosis (with a total of 3 stents in various heart arteries, for which he was taking a blood-thinner since the last heart attack on February 14, 2019.)  He also had insulin-dependent diabetes, chronic obstructive pulmonary disease, nephrolithiasis, and chronic renal failure, and he was on dialysis three times a week.

In fact, that’s how I found out that he was in trouble. His dialysis nurse called me and said he didn’t show up for his Monday morning appointment. After trying to reach him, thinking he had overslept, I called a relative and asked them to go check to see if he was at home. His car was, but he didn’t answer. After that, I called 911 who patched me through to the RCMP. They went to his house, saw him awake on his bed through his (main floor) bedroom window, and he was unable to get up. They broke the door down and called the EMT people. That would have been around 3 pm or so. The EMTs came and got an IV started. They took him to the local hospital who assessed him and intubated him as he was having difficulty breathing. Then they ambulanced him to the hospital where he normally did his dialysis. They got him there around 7 p.m.  Three hours after he got there, he took a turn for the worse, and went into septic shock. The nurse called me and asked me or someone to come to the hospital right now. They tried to revive him three times but to no avail. At 10:15 pm, he was pronounced dead.

And that is what the doctor told me ten minutes later, over the phone, as I was getting my coat on to make the two-and-a-half-hour trip to see him. Such pain I had not felt in over six years since my youngest daughter died at the age of 21.

My night-time trip was cancelled, of course. I made plans to pack up the next day, and go to the homestead to assess the damage and the mess. I might have slept four hours that night. The next night, with the help of some Melatonin, I slept for six hours, although there was one interruption at five a.m. when Ben’s alarms went off to remind him to get up for dialysis. Hopefully, tonight will be better.

During my waking hours, I have been doing a lot of thinking about the difference between existing and living. For most of his life, Ben just existed. He grew up thinking that he was a nuisance to his parents. He bore the inner scars of physical and psychological abuse by his mom and abandonment by his dad who never stopped her, and the bruises of an older brother who criticized everything he did and regularly pounded on him. He bore other scars too: a marriage that lasted only 14 years before it ended in divorce, alienation from his sons, rejection from an endless string of women, as well as being used by women who befriended him only for his bank account. His was a lonely life. He battled the loneliness with his art: he could draw landscapes, animals, and people just by looking at pictures of things. He composed so many songs and sang them with me and with that older brother when we were all so young (I was 16 at the time, so he was 22 and the other brother was 26) – gospel songs that were so beautiful you could hear a pin drop when we were done.

Yet he suffered. I remember him coming home from senior high school and sobbing as he begged me never EVER to judge a man just on his appearance. I never EVER forgot his words. 

Yes, most of his life he was a melancholy man. He existed; he created beautiful things and appreciated beauty in nature and in people, but his existence was spent waiting for the next good thing to happen, and being disappointed time after time after time. 

After his divorce in the early 1990s, he moved in with Mom and Dad. He was there for Mom after Dad passed away, and he made sure he was there to look after things for her. Others would come in and see him lazing around, as they called it. He rested because he couldn’t breathe if he got up and moved around. He had so many ailments: his lungs, his kidneys, his heart, his gall bladder, his pancreas,… people didn’t understand and he felt a lot of condemnation come from them. Nobody understood him, he told me, except me. And sometimes even that wasn’t enough to tame the monsters of hatred and bullying that he experienced – whether real or imagined – from others.

Once, he even tried to commit suicide. He had finally learned how to love unconditionally, and his girlfriend stole from him and used the money to get high. 

A few months later that girl died … and it took him months to make peace with that.

Photo "Eye" by graur codrin at www.freedigitalphotos.net

But by that time, he had learned to live. To REALLY LIVE.

You see, in October 2016, Ben had been diagnosed with stage one colon cancer. And in January 2017, he underwent a six-hour procedure to remove the cancer along with a 5-inch section of bowel. And when he woke from that surgery, while he was still recovering in the hospital, he was listening to the radio and a singer Skip Ewing was singing, “How can he be a king? He’s just a kid.” And God spoke to him in his heart, and said, “Are you listening, son?”  And he responded, tears streaming down his face, “Yes, Father. I’m here. I hear You.”

From that moment on, Ben started to really LIVE. He had some setbacks and some heartaches (like the death of that girlfriend). And he was living on a very limited income, never knowing if he would need to starve in order to be warm, or to freeze in order to eat. It was hard. It was REALLY hard. But he was finally LIVING. We would talk on the phone – and I would let him listen to music that he liked – and he would cry tears of beauty and joy. He never forgot how God rescued him, miraculously let him live, and would look after his every need. Even if he misplaced his car keys. Or his needles. Or his wallet.

Last year, on Valentine’s Day 2019, he suffered a major heart attack. The paramedics found him and the emergency team had to put an intravenous shunt through his shin bone to give him liquids. He screamed in pain and then his heart went into atrial fibrillation. They had to use the paddles to get him back – and he was “gone” for a few seconds there.

He remembered those few seconds. He felt completely at peace. He couldn’t see anything, but he knew that he was loved, cared for, and safe. And from that time onward, he lost his fear of death. He lost his fear of living, too. And the living he had been doing up until then just intensified. He could not keep silent about God’s love for him. Anyone who knew him heard him talk about higher things, spiritual things, wonderful things like love and joy and peace and goodness. He touched so many people that way: people in dialysis, people in drug stores, people at church, in grocery store lineups, everywhere.

That’s not to say that he didn’t have questions. We would talk for hours at a time as he tried to understand some spiritual concept or other. We talked almost every day, for up to two or three hours at a time. (It’s a good thing I have such a good cell phone plan that includes free long distance!) But every time we talked, he would not hesitate to tell me what he had been learning, what God showed him or how He helped him find something he needed. Or met a need in his finances. Or let him talk to someone about his experiences in the Lord.

And now this week, I have been living in his house without him here. Memories galore. Yet it feels so surreal: not quite right, like he should be here laughing and joking with us, listening to YouTube videos, or talking about how wonderful Heaven is.

And yes, he could not let a conversation go by before he mentioned how deeply he longed to see his Master’s face, to walk the shores of Glory with Him, to hug Dad, and to jam with friends and family gone ahead.

And now he is there. And he is LIVING beyond his wildest imaginings – and he could imagine a LOT!!

Good night Ben. See you in the Morning. Keep a chair for me by the hearth, and say hi to Dad for me. I love you beyond measure. 

And … I will miss you. I’ll never forget what you taught me about how to live life in a positive way and not just exist expecting the worst.

Thank you. Thank you SO MUCH.