To the Adventure!

The last week has been ... interesting to say the least. Hubby started chemotherapy yesterday morning. His schedule was given to us at that time. So his next chemo treatment is on July 29 (Wednesday), and then he gets a 1.5-week-long break from it. In between each treatment, usually during the run of a week, there are blood tests, oncology consultations, home visits from Home Care nursing, physiotherapist, occupational therapist, dietician, and on and on the merry-go-round goes.  Then he goes back on August 10th for the first treatment of his next cycle. 

I'm learning the vocabulary of cancer treatment. At first it was confusing, but I'm catching on.  

The time between the first treatment of one period of time and the first treatment of the next period of time (usually 4 weeks but in this case it's 3 weeks) is called a cycle. The period of time between the first treatment of the first cycle and the last treatment of the last cycle (which is 3 months) is called a round.

Free image from Pixabay

After the first round of treatment cycles, he will have a CT scan to determine if the drugs have had a shrinking effect on the tumors and lumps. If it is working, we go to the beginning of the next (3-month) round. Perhaps at that time, they'll move to a 4-week cycle (3 treatments, 1 per week, followed by a fourth week off). It depends on how well he handles the medications. There are at-home medications for him to take for the day of treatment and for the 2 days after treatment.

So far, after only one treatment, he seems well. He is not bothered by nausea at all, and if he is, then we have medications for him to take as needed for that. The best thing so far is that after we reduced his pain medication so that he wasn't quite so "out of it", he is more alert ... and even with the reduced medication, his pain seems to be less. What a relief!

On July 30, he will see a radio-oncologist to address the oozing / bleeding in the stomach cancer that was observed on July 8th. We'll probably set up some sessions to irradiate that specific area (that is, hit it with radiation) and get the bleeding under control (perhaps) as a result. I have no idea what that will look like or how often he will need to have these radiation treatments. Once I know, I hope I will have the strength to keep my readers informed. 

Caring for someone as close as my husband is to me - he is my best friend, after all - is taxing. Not only do I need to look after his nutrition and medication needs, I need to watch him closely so that he is sure to follow the requirements for looking after his toileting ... specific procedures like sitting to pee, closing the toilet lid, flushing twice, and then washing his hands. These procedures are to help to protect the other people in the house from exposure to his bodily fluids, as they don't know what the long-term effects of that exposure would be for those NOT in treatment. I also have to make sure that if he soils his clothing, it is kept separate from our laundry and double-washed.

And that is heaped up on top of all the things that need to be done to run a household, which, to my shame, has all been handled by my husband - until he was no longer able. Now, my daughter and I have to share the chores: dishes, sweeping, laundry, trash, cat's boxes, feeding the animals, keeping them hydrated, letting the dog out several times a day, groceries ... and also the unexpected duties that crop up. Neighbors have offered and still are blessing us with things we can't handle, like the lawn. Some have dropped off food. It all helps, but the day-to-day can be tiring.

There is much we don't know about all of this. For example, we are not sure if our insurance will cover the cost of the medications they are giving him, or if they do, how much they will cover (and how much they initially cost!!) and even though we have applied for PEI's Catastrophic Drug program, we have not heard whether he will qualify for it. 

At any rate, we are determined to be transparent about his journey and our own parallel journey as we walk this road beside him. His attitude is positive, and so far, so is ours. We surround ourselves with people and music and news that is/are positive, and we speak healing (see previous post) daily into his body. We know so many others are praying for him and sending him healing vibes. And I know that he is loved - so much more than he would ever believe - so very much by so very many. 

In a sense, even though we live on a fixed income, we feel rich, because we have the love and support of family, friends, and neighbors. And we are looked after by our Higher Power. What more could we ask for?  

The Waiting Room ... Again

 Since my last post, most of the time has been spent in waiting. Day-to-day duties and chores are getting done, even if a bit late at times. The main feature of our moments has been hubby's pain management, as the tumour on the pancreas presses in on his spine and causes nerve pain, which we are managing with prescribed pain-killers. 

We have been charting the little victories: the chiropractor whose treatments and whose prayers over him have reduced the severity of the pain - as the muscles around the area are very tight and increase the pain, and discouragement also increases the pain - and we look forward to those sessions.

Free photo from Pixabay

I've been waiting specifically for any contact from Oncology. Thankfully, two days ago (Friday, July 3) we got a call from the Cancer Centre with the information we'd been waiting to hear: he has appointments this coming week - July 6, 7, and 8 - culminating with a consultation with the medical (chemo) oncologist who will be working with us. I say "us" because we are just as much a part of hubby's treatment as the chemotherapy drugs will be. 

We've been asked to bring a few things: his health care card, his medical insurance number, and his pills (including supplements and over-the-counter meds) in their actual pill bottles. That leads me to believe that they will be billing his medical insurance for the chemotherapy drugs, and they are NOT CHEAP. Since his plan covers only 80% of the cost, there will be a cost to him for the treatments that have the purpose of trying to kill the cancer while saving his life. 

Wow. Just ... wow.

To ask for help is not in our nature, so I'm not going to do so at the moment. People have been very kind, offering help in tangible ways like mowing the grass or transporting garbage bins, etc., and we are grateful for every single act of love and support we have been receiving, knowing full well that there is no way we can repay anyone for their kindness. We are so humbled by their generosity. We are so blessed by their love and their prayers and positive thoughts toward us. 

Nobody has been negative - at least, not on purpose - and we are grateful for that as well. We can feel the love holding us up, the prayers acting like a life-jacket in deep water, the social media likes and comments that remind us that we are not in this alone. It all helps. So, even though it feels so NOT enough for me to say, I say it anyway: THANK YOU ALL. 

We still believe in miracles, whether they come instantly or gradually. And we look forward to what our Higher Power will do through those whom He has gifted with special talents and gifts.